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Early Diagnosis Launch 2024

Juvenile Arthritis: Early Diagnosis – Early Intervention Changing Children’s Lives is a first-of-its-kind investment, signalling Australia’s commitment to changing the lives of children with undiagnosed juvenile arthritis (JA)​

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Juvenile Arthritis Week 2024

JAFA is super-excited about running national Juvenile Arthritis Week to acknowledge the thousands of young Australians living with juvenile arthritis and related childhood rheumatic diseases. The theme, Early Diagnosis – Early Intervention, aims to promote prompt diagnosis and referral to effective treatment to reduce long term pain and disability. Activities include Family Hangouts, an event in Parliament House Canberra, media and social media campaigns. Read more to see how you help.

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IMPACT Study: Landmark Results Out Now

JAFA is proud to present the results of its landmark ‘IMPACT Study’ which detail the previously hidden physical, mental, emotional and financial burden of juvenile idiopathic arthritis (JIA) and childhood rheumatic diseases (CRDs) on affected 0-25yr olds and their families and carers.

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My JIA Booklet

JAFA is proud and delighted to present this informative booklet about juvenile idiopathic arthritis (JIA) as our World Arthritis Day gift to all children and families who are living with it.

My JIA has been adapted by JAFA – with the help of Australian paediatric rheumatology professionals, and parents – for use in Australia from the original UK booklet of the same name. It presents, clear and easy to understand explanations about what JIA is and how it is treated and managed.

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Australian Juvenile Arthritis Registry (AJAR)

Something you can do today to change your own or your child’s tomorrow! Launched in Parliament House in March 2023, AJAR is now open for 0-25yr olds with juvenile arthritis or other childhood rheumatic diseases. Registering with AJAR will help build a bank of information about how many children and young people have these diseases and if this changes over time. Knowing this will support planning for better services and research for better treatments.

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Australian Institute of Health and Welfare Report on JIA

JAFA welcomes today’s release of the AIHW’s latest report on the status of juvenile idiopathic arthritis indicating that up to 30,000 children and young people in Australia aged 0-24 are living with arthritis ie a similar prevalence to diabetes in the same age group. It also confirms increased hospitalisations and a critical lack of specialist workforce.

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Family Fundraising Effort Publicly Acknowledged

A big thank you to Bondi and the whole Condon family for their initiative and determination in holding a year-long Swimathon to raise funds for the Australian Juvenile Arthritis Registry (AJAR). What perseverance and what a great result!

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