As JAFA celebrates its fifth birthday, it is honoured to welcome Her Excellency, the Honourable Ms Sam Mostyn AC, Governor General of the Commonwealth of Australia as its Patron.
Peak bodies align in consensus statement on juvenile arthritis as national stakeholders convene on unacceptable delays in diagnosis.
Be the spark – JAFA encourages gifts in wills as part of national Include a Charity Week Sept 4-8 2024 and National Wills Week Sept 9 -15
Thousands of NSW children living with painful and incurable juvenile arthritis are set to benefit from a NSW government budget announcement, investing a record $6.9m in additional specialist paediatric services.
Juvenile Arthritis: Early Diagnosis – Early Intervention Changing Children’s Lives is a first-of-its-kind investment, signalling Australia’s commitment to changing the lives of children with undiagnosed juvenile arthritis (JA)
JAFA is super-excited about running national Juvenile Arthritis Week to acknowledge the thousands of young Australians living with juvenile arthritis and related childhood rheumatic diseases. The theme, Early Diagnosis – Early Intervention, aims to promote prompt diagnosis and referral to effective treatment to reduce long term pain and disability. Activities include Family Hangouts, an event in Parliament House Canberra, media and social media campaigns. Read more to see how you help.
JAFA is proud to present the results of its landmark ‘IMPACT Study’ which detail the previously hidden physical, mental, emotional and financial burden of juvenile idiopathic arthritis (JIA) and childhood rheumatic diseases (CRDs) on affected 0-25yr olds and their families and carers.
JAFA is proud and delighted to present this informative booklet about juvenile idiopathic arthritis (JIA) as our World Arthritis Day gift to all children and families who are living with it.
My JIA has been adapted by JAFA – with the help of Australian paediatric rheumatology professionals, and parents – for use in Australia from the original UK booklet of the same name. It presents, clear and easy to understand explanations about what JIA is and how it is treated and managed.
We want everyone to know that kids get arthritis too!
When it comes to arthritis, most people don’t think about children
and young people.
Something you can do today to change your own or your child’s tomorrow! Launched in Parliament House in March 2023, AJAR is now open for 0-25yr olds with juvenile arthritis or other childhood rheumatic diseases. Registering with AJAR will help build a bank of information about how many children and young people have these diseases and if this changes over time. Knowing this will support planning for better services and research for better treatments.
