Something you can do today to change your own or your child’s tomorrow! Launched in Parliament House in March 2023, AJAR is now open for 0-25yr olds with juvenile arthritis or other childhood rheumatic diseases. Registering with AJAR will help build a bank of information about how many children and young people have these diseases and if this changes over time. Knowing this will support planning for better services and research for better treatments.

JAFA welcomes today’s release of the AIHW’s latest report on the status of juvenile idiopathic arthritis indicating that up to 30,000 children and young people in Australia aged 0-24 are living with arthritis ie a similar prevalence to diabetes in the same age group. It also confirms increased hospitalisations and a critical lack of specialist workforce.

JAFA welcomes the inclusion of $800,000 in the 2023-24 federal budget to undertake work on awareness and health professional education with a focus on reducing delays in diagnosis.

A big thank you to Bondi and the whole Condon family for their initiative and determination in holding a year-long Swimathon to raise funds for the Australian Juvenile Arthritis Registry (AJAR). What perseverance and what a great result!

We need your help with two ground breaking initiatives: The National Cost of Illness study & the Australian Juvenile Arthritis Registry (AJAR)

On March 21st 2023 in Parliament House Canberra, Assistant Health Minister, the Hon Ged Kearney launched the Australian Juvenile Arthritis Registry – another pivotal landmark in the history of juvenile arthritis in Australia.

Are you Ready For Juvenile Arthritis Week Events?
18th March Starts Australia’s first-ever Juvenile Awareness Week. Time for some family fun and for kids with JIA and CRDs to meet other kids like them. BYO own snacks and meet families like yours:

The first-ever comprehensive national survey of the cost of juvenile arthritis and childhood rheumatic diseases in Australia is now open and we are asking for your participation.

This landmark national Cost of Illness Study will provide essential baseline information to address knowledge and evidence gaps about the financial impact of juvenile arthritis on the health system, on families and on the wider economy and will inform future national health policy and planning to improve services and support for juvenile arthritis. The study will cover 0-25yr olds.

When we recently had afternoon tea with the Prime Minister at the lodge in Canberra, we presented him with messages from some kids and young people with arthritis. They provided insights into living with these diseases, and they shared their thoughts on
What it’s like to have arthritis and What they would do for juvenile arthritis if they were Prime Minister.