If you have a child with juvenile arthritis or other childhood rheumatic disease this is for you...
The first-ever comprehensive national survey of the cost of juvenile arthritis and childhood rheumatic diseases in Australia is now open and we are asking for your participation.
JAFA Has commissioned researchers from the University of Sydney to conduct this landmark national Cost of Illness Study. The study will provide essential baseline information to address knowledge and evidence gaps about the financial impact of juvenile arthritis on the health system, on families and on the wider economy and will inform future national health policy and planning to improve services and support for juvenile arthritis. The study will cover 0-25yr olds.
JAFA is grateful for the generous support of investment company Five V Capital and Adrian and Charlotte MacKenzie who have funded this vital piece of work.
About the survey
If you have a child with one of these conditions juvenile arthritis or other childhood rheumatic diseases or you are a young adult aged 18-25 yrs with one of these conditions, completing the survey is vital to helping us get this right.
- the survey is anonymous
- takes about 30 mins to complete
- your participation is vital
The results of the survey will be released later this year. JAFA will use them to make the case for (State and Territory Federal) Governments to increase and expand the paediatric rheumatology workforce to make services and support more accessible to individuals and families with juvenile arthritis and childhood rheumatic diseases across Australia.
We thank you for taking the time to be involved.