The Juvenile Arthritis Foundation Australia (JAFA) is the primary organisation representing children with juvenile arthritis and their families in Australia. It was named Emerging Not-for-Profit (NFP) of the Year in the 2021 Third Sector Awards.
JAFA is a fully registered national charity with DRG1 status. It was founded in 2019 in response to the urgent need for a national voice dedicated exclusively to representing and addressing the needs of children and adolescents with arthritis and related rheumatic diseases (referred to collectively by JAFA as juvenile arthritis) and their families and carers.
A message from our Founders..
- PROFESSORS RUTH COLAGIURI AM & STEPHEN COLAGIURI AO
JAFA’s primary aims are to:
- Raise awareness of juvenile arthritis among politicians and government, the education sector, the broader community and potential funders.
- Lobby governments to provide optimal and accessible health care and support for children and adolescents with juvenile arthritis.
- Influence and partner with funders to invest in research into the causes, treatment, care and possible cure for juvenile arthritis.
What we do
JAFA provides direct services to children and adolescents with juvenile arthritis and their families:
- We hold support groups and regular online symposia on critical management and research issues.
- We host a secure digital play space for young people, known as KidsConnect, which provides peer support and helps to reduce isolation.
We also drive political advocacy to raise awareness of juvenile arthritis among high-level policy makers. This is designed to effect systemic and sustainable change to improve the lives of young people with juvenile arthritis.
In everything we do, we connect the juvenile arthritis community – raising awareness among government representatives, health professionals and the community, supporting impacted families, and mobilising people in our networks to support our important advocacy campaigns and fundraising activities.
• earlier diagnosis, improved treatment, care and support
• increased professional, community, and political awareness and advocacy
• building communities of influence to fund vital research and programs.
• unwavering in its dedication to meeting the needs of children and young people with arthritis, and their families and carers
• open and transparent in all its dealings
• strategic, and receptive to ideas and opportunities
• sensitive to and respectful of diversity and differences
• a supportive collaborator.