First federal budget allocation for juvenile arthritis
JAFA welcomes the inclusion of $800,000 in the 2023-24 federal budget to undertake work on awareness and health professional education with a focus on reducing delays in diagnosis.
Family Fundraising Effort Publicly Acknowledged
A big thank you to Bondi and the whole Condon family for their initiative and determination in holding a year-long Swimathon to raise funds for the Australian Juvenile Arthritis Registry (AJAR). What perseverance and what a great result!
2 things you can do for your child today
to make a difference to their tomorrow
We need your help with two ground breaking initiatives: The National Cost of Illness study & the Australian Juvenile Arthritis Registry (AJAR)
The Future of Paediatric Rheumatology in Australia
In JAFA’s 9th Online Symposium on The Future of Paediatric Rheumatology, Dr Ben Whitehead and Dr Pavla Walsh talk about new and emerging medications and standards of care, and what to expect in pain management in the future. They are joined by Australia’s younger generation of paediatric rheumatologists who share their thoughts on the future of treatment and care of JIA and CRDs.
History in the Making – the first Australian Juvenile Arthritis Registry launched
On March 21st 2023 in Parliament House Canberra, Assistant Health Minister, the Hon Ged Kearney launched the Australian Juvenile Arthritis Registry – another pivotal landmark in the history of juvenile arthritis in Australia.
JAFA Family Get Togethers (Brisbane, Sydney & Melbourne)
Are you Ready For Juvenile Arthritis Week Events?
18th March Starts Australia’s first-ever Juvenile Awareness Week. Time for some family fun and for kids with JIA and CRDs to meet other kids like them. BYO own snacks and meet families like yours:
Landmark Cost of Illness Study Now Underway
The first-ever comprehensive national survey of the cost of juvenile arthritis and childhood rheumatic diseases in Australia is now open and we are asking for your participation.
This landmark national Cost of Illness Study will provide essential baseline information to address knowledge and evidence gaps about the financial impact of juvenile arthritis on the health system, on families and on the wider economy and will inform future national health policy and planning to improve services and support for juvenile arthritis. The study will cover 0-25yr olds.
Messages to Prime Minister Albanese from some kids with arthritis
When we recently had afternoon tea with the Prime Minister at the lodge in Canberra, we presented him with messages from some kids and young people with arthritis. They provided insights into living with these diseases, and they shared their thoughts on
What it’s like to have arthritis and What they would do for juvenile arthritis if they were Prime Minister.
JAFA sincerely thanks Prime Minister Albanese for his help in raising awareness of juvenile arthritis
On November 25, in response to a request from JAFA, the Prime Minister, Mr Anthony