IMPACT Study: Landmark Results Out Now
JAFA is proud to present the results of its landmark ‘IMPACT Study’ which detail the previously hidden physical, mental, emotional and financial burden of juvenile idiopathic arthritis (JIA) and childhood rheumatic diseases (CRDs) on affected 0-25yr olds and their families and carers.
My JIA Booklet
JAFA is proud and delighted to present this informative booklet about juvenile idiopathic arthritis (JIA) as our World Arthritis Day gift to all children and families who are living with it.
My JIA has been adapted by JAFA – with the help of Australian paediatric rheumatology professionals, and parents – for use in Australia from the original UK booklet of the same name. It presents, clear and easy to understand explanations about what JIA is and how it is treated and managed.
World Arthritis Day (WAD) is on the 12th of Oct!
We want everyone to know that kids get arthritis too!
When it comes to arthritis, most people don’t think about children
and young people.
Australian Juvenile Arthritis Registry (AJAR)
Something you can do today to change your own or your child’s tomorrow! Launched in Parliament House in March 2023, AJAR is now open for 0-25yr olds with juvenile arthritis or other childhood rheumatic diseases. Registering with AJAR will help build a bank of information about how many children and young people have these diseases and if this changes over time. Knowing this will support planning for better services and research for better treatments.
Australian Institute of Health and Welfare Report on JIA
JAFA welcomes today’s release of the AIHW’s latest report on the status of juvenile idiopathic arthritis indicating that up to 30,000 children and young people in Australia aged 0-24 are living with arthritis ie a similar prevalence to diabetes in the same age group. It also confirms increased hospitalisations and a critical lack of specialist workforce.
First federal budget allocation for juvenile arthritis
JAFA welcomes the inclusion of $800,000 in the 2023-24 federal budget to undertake work on awareness and health professional education with a focus on reducing delays in diagnosis.
Family Fundraising Effort Publicly Acknowledged
A big thank you to Bondi and the whole Condon family for their initiative and determination in holding a year-long Swimathon to raise funds for the Australian Juvenile Arthritis Registry (AJAR). What perseverance and what a great result!
2 things you can do for your child today
to make a difference to their tomorrow
We need your help with two ground breaking initiatives: The National Cost of Illness study & the Australian Juvenile Arthritis Registry (AJAR)
The Future of Paediatric Rheumatology in Australia
In JAFA’s 9th Online Symposium on The Future of Paediatric Rheumatology, Dr Ben Whitehead and Dr Pavla Walsh talk about new and emerging medications and standards of care, and what to expect in pain management in the future. They are joined by Australia’s younger generation of paediatric rheumatologists who share their thoughts on the future of treatment and care of JIA and CRDs.
History in the Making – the first Australian Juvenile Arthritis Registry launched
On March 21st 2023 in Parliament House Canberra, Assistant Health Minister, the Hon Ged Kearney launched the Australian Juvenile Arthritis Registry – another pivotal landmark in the history of juvenile arthritis in Australia.