JIA’s Got Talent: Celebrating our young people
This video of JAFA’s last online Symposium for 2024 highlights the inspiring determination and resilience of young people with JIA and CRDs. Prefaced by a presentation from paediatric rheumatologist and sports doctor, Dr Damien McKay, it features stories and insights of a champion skier; an actor, singer, songwriter; a cellist; a mountain bike champion; and an artist and finalist in the 2024 Young Archies.
Transition: Through School Years to Adulthood
Leading clinicians and a psychologist dispel misconceptions about JIA and CRDs in adulthood and provide insights and advice on negotiating the education system from starting school through moving up to high school and entering the workforce or further education and training.
Governor General Sam Mostyn AC announced as JAFA Patron
As JAFA celebrates its fifth birthday, it is honoured to welcome Her Excellency, the Honourable Ms Sam Mostyn AC, Governor General of the Commonwealth of Australia as its Patron.
A Giant Step Forward
Peak bodies align in consensus statement on juvenile arthritis as national stakeholders convene on unacceptable delays in diagnosis.
Be the spark – JAFA encourages gifts in wills
Be the spark – JAFA encourages gifts in wills as part of national Include a Charity Week Sept 4-8 2024 and National Wills Week Sept 9 -15
Understanding Autoimmune Disease: Medical Management and Practical Tips
Leading specialists, A/Prof Jane Munro from Melbourne, Dr. Jeff Chaitow from Sydney, Dr. Tim Beukelman from Adelaide, clinical Nurse Consultant, Julie Jones from Melbourne, shared their expert knowledge and insights on paediatric rheumatology. In this new video, they discuss the nature, disease process, and treatment of autoimmunity in JIA and related CRDs including medication pros and cons and practical home management of medication taking and side effects.
History in the Making: NSW Government Redresses Underfunding of Juvenile Arthritis Services
Thousands of NSW children living with painful and incurable juvenile arthritis are set to benefit from a NSW government budget announcement, investing a record $6.9m in additional specialist paediatric services.
Early Diagnosis Launch 2024
Juvenile Arthritis: Early Diagnosis – Early Intervention Changing Children’s Lives is a first-of-its-kind investment, signalling Australia’s commitment to changing the lives of children with undiagnosed juvenile arthritis (JA)
Juvenile Arthritis Week 2024
JAFA is super-excited about running national Juvenile Arthritis Week to acknowledge the thousands of young Australians living with juvenile arthritis and related childhood rheumatic diseases. The theme, Early Diagnosis – Early Intervention, aims to promote prompt diagnosis and referral to effective treatment to reduce long term pain and disability. Activities include Family Hangouts, an event in Parliament House Canberra, media and social media campaigns. Read more to see how you help.
New and Emerging Australian Research and Consumer Led Research Priorities
Hear Professor Davinder Singh Grewal’s latest in Paediatric Rheumatology. Professor Natasha Nassar shares JAFA’s survey results on JIA’s impact. Professor Catherine Hill discusses transitioning from Children’s to Adult Services. Professor Stephen Colagiuri updates on the Australian Juvenile Arthritis Registry (AJAR).