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JAFA

Symposia Series

New and Emerging Australian Research and Consumer Led Research Priorities

Hear Professor Davinder Singh Grewal’s latest in Paediatric Rheumatology. Professor Natasha Nassar shares JAFA’s survey results on JIA’s impact. Professor Catherine Hill discusses transitioning from Children’s to Adult Services. Professor Stephen Colagiuri updates on the Australian Juvenile Arthritis Registry (AJAR).

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IMPACT Study: Landmark Results Out Now

JAFA is proud to present the results of its landmark ‘IMPACT Study’ which detail the previously hidden physical, mental, emotional and financial burden of juvenile idiopathic arthritis (JIA) and childhood rheumatic diseases (CRDs) on affected 0-25yr olds and their families and carers.

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My JIA Booklet

JAFA is proud and delighted to present this informative booklet about juvenile idiopathic arthritis (JIA) as our World Arthritis Day gift to all children and families who are living with it.

My JIA has been adapted by JAFA – with the help of Australian paediatric rheumatology professionals, and parents – for use in Australia from the original UK booklet of the same name. It presents, clear and easy to understand explanations about what JIA is and how it is treated and managed.

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Australian Juvenile Arthritis Registry (AJAR)

Something you can do today to change your own or your child’s tomorrow! Launched in Parliament House in March 2023, AJAR is now open for 0-25yr olds with juvenile arthritis or other childhood rheumatic diseases. Registering with AJAR will help build a bank of information about how many children and young people have these diseases and if this changes over time. Knowing this will support planning for better services and research for better treatments.

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Australian Institute of Health and Welfare Report on JIA

JAFA welcomes today’s release of the AIHW’s latest report on the status of juvenile idiopathic arthritis indicating that up to 30,000 children and young people in Australia aged 0-24 are living with arthritis ie a similar prevalence to diabetes in the same age group. It also confirms increased hospitalisations and a critical lack of specialist workforce.

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Family Fundraising Effort Publicly Acknowledged

A big thank you to Bondi and the whole Condon family for their initiative and determination in holding a year-long Swimathon to raise funds for the Australian Juvenile Arthritis Registry (AJAR). What perseverance and what a great result!

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Symposia Series

The Future of Paediatric Rheumatology in Australia

In JAFA’s 9th Online Symposium on The Future of Paediatric Rheumatology, Dr Ben Whitehead and Dr Pavla Walsh talk about new and emerging medications and standards of care, and what to expect in pain management in the future. They are joined by Australia’s younger generation of paediatric rheumatologists who share their thoughts on the future of treatment and care of JIA and CRDs.

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